June 12, 2013
The Nuffield Council on Bioethics report about Personalised Healthcare includes consideration of DTC Genetic Testing
The fall in the cost of DNA sequencing has opened the door to providing an individual with genetic information on such issues as paternity and the risk of developing or passing on a particular genetic disease. Some services are available via formal channels, but there is also a burgeoning market in direct-to-consumer (DTC) sales of genetic information and the associated interpretation of that data.
This video, made by second year students at the University of Leicester, looks at some of the ethical issues arising from the availability of personal genetic data direct from commercial companies.
The following link offer more details about: Teaching resources using the Nuffield report on medical profiling
You may also be interested in the post Is there a gene for oversimplistic analysis? from our sister site Journal of the Left-handed Biochemist.
May 19, 2011
This is the 4th resource produced by Nuffield's education team to accompany their more chunky reports on ethical developments in biology and medicine
The latest in a series of educational resources to accompany major reports by the Nuffield Council on Bioethics are now available. Picking up from the 2010 Nuffield report on the ethics of Personalised Healthcare, the resources have been developed by the Reaching Out to Young People team. The materials are based around three case studies looking at the impact of different developments moving medicine away from the traditional patient-doctor consultation. These are: the availability of personal genetic profiles; the ability to buy medicines online; and the rise of the internet as a source of health information.
The story of Christina and her decision about whether or not to buy a test for an inherited disease is one of the new resources
(Note: anyone who has ended at this post looking for “personalised healthcare” in the pharmacogenetic sense might like to know that this was the subject of a different Nuffield report in 2003 and hence it was not included in the 2010 document).